The voice therapy is the LSVT-LOUD: Lew Silverman Voice Training and I don’t know what LOUD stands for. A neurologist or other doctor recommends you to take the lessons. I had to put in a special request for my insurance to pay for it. Lessons are 4 days a week for 6 weeks or maybe longer, and you have homework every day. So it is a commitment to do this. Training is at Cottage Rehab Hospital – Therapy section.
And to use my voice more and loudly, I have been singing kerioki with Sing Fit application. Some songs are free and some you can pay for. You can record your voice if you want. You have to sing loud.
I just wanted to pass on the opportunity to get better at one thing at least. Everything else might be falling apart but if you can still talk and sing you can at least communicate and express yourself!
Here’s to a more social new year!”
What is LSVT LOUD?
LSVT LOUD® is an effective speech treatment for individuals with Parkinson disease (PD) and other neurological conditions. LSVT LOUD, named for Mrs. Lee Silverman (Lee Silverman Voice Treatment – LSVT) was developed in 1987 and has been scientifically studied for nearly 20 years with funding support from the National Institute for Deafness and other Communication Disorders (NIDCD) of the National Institutes of Health. Published research data support improvements in vocal loudness, intonation, and voice quality for individuals with PD who received LSVT LOUD, with improvements maintained up to two years after treatment. Recent research studies have also documented the effectiveness of this therapy in improving the common problems of disordered articulation, diminished facial expression and impaired swallowing. Additionally, two brain imaging studies have documented evidence of positive changes in the brain following administration of the therapy.
LSVT LOUD improves vocal loudness by stimulating the muscles of the voice box (larynx) and speech mechanism through a systematic hierarchy of exercises. Focused on a single goal “speak LOUD!” – the treatment improves respiratory, laryngeal and articulatory function to maximize speech intelligibility. The treatment does not train people for shouting or yelling; rather, LSVT LOUD uses loudness training to bring the voice to an improved, healthy vocal loudness with no strain.
Treatment is administered in 16 sessions over a single month (four individual 60 minute sessions per week). This intensive mode of administration is consistent with theories of motor leaning and skill acquisition, as well as with principles of neural plasticity (the capacity of the nervous system to change in response to signals), and is critical to attaining optimal results. The treatment not only simulates the motor system but also incorporates sensory awareness training to help individuals with PD recognize that their voice is too soft, convincing them that the louder voice is within normal limits, and making them comfortable with their new louder voice.
Patients are trained to self-generate the adequate amount of loudness to make their speech understood. While LSVT LOUD has been successfully administered to individuals in all stages of PD, the treatment has been most effective among those who are in early or middle stages of the condition. LSVT LOUD has also been applied to individuals with sub-types of PD (Shy-Drager syndrome, multi-system atrophy and progressive supranuclear palsy), however the largest dataset is for individuals with Idiopathic Parkinson disease (IPD). Recently, LSVT LOUD has been applied to select individuals with stroke, multiple sclerosis, Down syndrome, and cerebral palsy with positive outcomes.
The Pharmaceutical Journal, 24 DEC 2014
Gastrointestinal dysfunction, in particular constipation, affects up to 80% of Parkinson’s disease (PD) patients and may precede the onset of motor symptoms by many years. Now, researchers have found that the gut microbiome in PD patients differs from that in healthy individuals.
By analysing stool samples, Filip Scheperjans, from the University of Helsinki, and colleagues found that the quantity of bacteria from the Prevotellaceae family was 77.6% lower in PD patients compared with controls. Meanwhile, the amount of Enterobacteriaceae was positively correlated with the severity of postural instability and gait difficulty in PD patients.
“These findings suggest that the intestinal microbiome is altered in PD and is related to motor phenotype,” write the authors in Movement Disorders (online, 5 December 2014).
In the Santa Ynez Valley we have our own specific challenges. Santa Barbara may be great, but for us “Parkies” it is not always easy nor convenient, much less safe to get to. We moved to this Valley because we like the small town feel and the support of those who know and love us.
The Santa Ynez Valley PD Support group was organized by Parkinson’s patients who understand what you are feeling. We are not doctors, but others who are going through the same fears and issues you are going through. We have the symptoms. We are on the meds. Our caregivers have the same concerns yours have.
But now we have each other.
Our goal is to learn, grow, talk, explore and do our best to live fully with PD.
In the words of Davis Phinney, (Olympic athlete, Winner Tour de France, Parkinson’s patient):
Every Victory Counts!
“Breathe. You are not alone. There is much you can do to proactively affect the course of your Parkinson’s disease, and at least one very good reason to do it:
Many neurologists report that symptom deterioration is often significantly slower in those who take a positive and proactive stance toward their condition than in those who do not.
It would be ridiculous to suggest that a positive mental attitude is achievable all the time. But there are various methods that can help enormously to remain upbeat about life. Connect with others. Don’t let yourself become isolated.” (Michael J. Fox Foundation)
The SYV Parkinson’s Support Group meets the second Tuesday of each month at 4:30 at St. Mark’s In-the-Valley in Los Olivos.
Note that there is no meeting in December of 2014.